Why people have no choice but to go Complementary- PLACEBO VS NOCEBO
A star rating for GPs ! I'm sure a 5 star would look pretty but wouldn't help me.
All I need is a GP who is kind and caring and supportive.......who puts my needs above protecting their own back or meeting Government targets.
A GP who doesn't punish me for being ill, if they can't 'cure me'.....who isn't threatened by a knowledgeable patient.
My last GP was so dismissive, unsupportive, that he has left me literally traumatised......Oh yes he acknowledged my symptoms fitted ME/CFS - but treated me like an unmotivated psychiatric case.....threatening to have me locked up if I ever told him I was very down again(I'd lost my home/relationship/job & health).Ignoring my questions/references to the work of Dr Nancy Klimas (a leading USA immunologist)-dismissing supplements - "GP's don't do supplements !"
Having ME/cfs is like being accused of a crime you haven't committed & no one's listening.....
I need a GP who has an interest in immunology /haematology or hiv....that would be a start.
A GP who realises that the most effective , healing thing they can do for me is to accept that their support & understanding is crucial. Ok so there's no cure.....fine ........but you as a GP can be of massive help just believing.......just using your "status" so that I can fill out my housing forms & get my rightful place on the list......Explain how the stress of living under the constant threat of eviction if I make a fuss is damaging my health......explain how a better environment would really help.
Recently a woman in Brighton West Sussex became the first person to die of ME/CFS....she'd been ill for 7 years.......the family lost all faith in the medical profession .......as she wasn't getting better her Doctors sectioned her.....eventually as she deteriorated they let her go..........she died .....
Don't say I'm paranoid.....that's how these GP's are.
You can't just find one with appropriate interests.no....you get who you are given......Some choice in the NHS !
Last year a Social Care friend tried for 11 months to help me find a new GP......but totally failing to miss the point of how traumatised I am by that GP, everytime she tried to talk to me about it, I would become hysterically upset........eventually she gave up.......
Now I feel I have no choice but to complain to the General Medical Council....without acknowledgement of the disgusting , unsupportive way I've been mishandled ....I don't think I can move on.
At least that letter of complaint may help protect me from the DWP.....who no doubt will punish me for not currently having a GP . I just can't risk getting another like him. Yet I'm not allowed to choose. Perhaps at appeal they will acknowledge that with his threats and unsupportive attitude I reasonably chose my only option......to opt for Complementary.......
Friends who really want to help people like me....don't TELL US DO THIS/DO THAT..... ASK us what we need you to do and see it through. If I need you to call a Utility company that won't listen to me.....don't let them fob you off too......as you'll have unwittingly justified their original failure to acknowledge the concerns of 'vulnerable customer'- Even worse you'll have reinforced and repeated the damaging dismissive unsupportive attitude of the GP who caused so much damage. Don't tell me to report a slum landlord to Environmental Health if that report could result in my eviction........
Keep the Government off my back & be there to fight my corner against these people who don't listen ! But remember....my energy is very limited....listen......don't tell. I don't need any more stress than I have. Respect that I know what I need....and what is priority & what is not........currently it is to be prepared to protect myself from any consequences of a reassessment....therefore a GMC complaint should at least be taken seriously....Everything else will fall into place. That doesn't mean it isn't stressful.
All I need is a GP who is kind and caring and supportive.......who puts my needs above protecting their own back or meeting Government targets.
A GP who doesn't punish me for being ill, if they can't 'cure me'.....who isn't threatened by a knowledgeable patient.
My last GP was so dismissive, unsupportive, that he has left me literally traumatised......Oh yes he acknowledged my symptoms fitted ME/CFS - but treated me like an unmotivated psychiatric case.....threatening to have me locked up if I ever told him I was very down again(I'd lost my home/relationship/job & health).Ignoring my questions/references to the work of Dr Nancy Klimas (a leading USA immunologist)-dismissing supplements - "GP's don't do supplements !"
Having ME/cfs is like being accused of a crime you haven't committed & no one's listening.....
I need a GP who has an interest in immunology /haematology or hiv....that would be a start.
A GP who realises that the most effective , healing thing they can do for me is to accept that their support & understanding is crucial. Ok so there's no cure.....fine ........but you as a GP can be of massive help just believing.......just using your "status" so that I can fill out my housing forms & get my rightful place on the list......Explain how the stress of living under the constant threat of eviction if I make a fuss is damaging my health......explain how a better environment would really help.
Recently a woman in Brighton West Sussex became the first person to die of ME/CFS....she'd been ill for 7 years.......the family lost all faith in the medical profession .......as she wasn't getting better her Doctors sectioned her.....eventually as she deteriorated they let her go..........she died .....
Don't say I'm paranoid.....that's how these GP's are.
You can't just find one with appropriate interests.no....you get who you are given......Some choice in the NHS !
Last year a Social Care friend tried for 11 months to help me find a new GP......but totally failing to miss the point of how traumatised I am by that GP, everytime she tried to talk to me about it, I would become hysterically upset........eventually she gave up.......
Now I feel I have no choice but to complain to the General Medical Council....without acknowledgement of the disgusting , unsupportive way I've been mishandled ....I don't think I can move on.
At least that letter of complaint may help protect me from the DWP.....who no doubt will punish me for not currently having a GP . I just can't risk getting another like him. Yet I'm not allowed to choose. Perhaps at appeal they will acknowledge that with his threats and unsupportive attitude I reasonably chose my only option......to opt for Complementary.......
Friends who really want to help people like me....don't TELL US DO THIS/DO THAT..... ASK us what we need you to do and see it through. If I need you to call a Utility company that won't listen to me.....don't let them fob you off too......as you'll have unwittingly justified their original failure to acknowledge the concerns of 'vulnerable customer'- Even worse you'll have reinforced and repeated the damaging dismissive unsupportive attitude of the GP who caused so much damage. Don't tell me to report a slum landlord to Environmental Health if that report could result in my eviction........
Keep the Government off my back & be there to fight my corner against these people who don't listen ! But remember....my energy is very limited....listen......don't tell. I don't need any more stress than I have. Respect that I know what I need....and what is priority & what is not........currently it is to be prepared to protect myself from any consequences of a reassessment....therefore a GMC complaint should at least be taken seriously....Everything else will fall into place. That doesn't mean it isn't stressful.
Labels: ME/CFS COMPLEMENTARY BAD GP POOR HOUSING WELFARE REFORM
posted by Dyke_Dilemmas at 11:48 am
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